
Today was our parish picnic at the park and though I should have found comfort in the throngs of people being "cut of the same cloth" I found the thought of being "in the spotlight" to be a little overwhelming as my son challenged my every directive. So, I guess this is me taking to the "electronic pen" to explain my son---and myself. We have recently received the second diagnosis of Autism disorder within the ranks of our seven children. There may be more coming. We've been hot on the trail of what has been causing so much discord within our home. Let me be clear that both of our children who hold this diagnosis are VERY high functioning so that to the unaware eye they would appear as a bratty, mean spirited child. The reality I'm discovering is that autistic children often do not have the tools to communicate what is bothering them so they react in unexpected ways to get the message across they are not happy, comfortable, feeling secure, etc. Though I'm ecstatic that my kids appear "normal" there is little about them to signal the WHY behind the tantrums, panic, screams, or fits of rage. Shoot, I gave birth to and lived with my boys for years without understanding this, being completely baffled by their responses- so I get it. I am just a little at a loss on how I should behave when I'm feeling a bit judged or my children are misunderstood. I refuse to label them---though a huge white sign on the back just might have people nodding their heads and saying "Ahaa- that explains it." There is still much I need to learn to survive these years while my family and I educate ourselves... but in the meantime- please- if you see a parent interacting with/or ignoring a full-blown melt-down think twice before dousing with water (unless ruby slippers are involved) but perhaps do offer that nod of "I understand." You just might be the sanity that brings Peace and saves the day...feel free to carry red cape with you!
Sending love AND understanding. And don't worry about those who appear to be judging. For a great quote that I love is: "Those who matter don't mind, and those who mind don't matter" ~Dr. Seuss
ReplyDeleteEveryone can use a bit of the "Dr". Blessings, Lois